Where Linda had pleasant interactions with researchers, this led to positive partnership experiences
Transcript
So there’s – there has been a lot of different groups now, and so at this point, I mean, it’s – sometimes it’s meeting old friends when I start a new project, which is lovely, including people in different parts of Canada, and from Ontario, which is usually a big part of these groups, Princess Margaret, or Canadian Partnership Against Cancer (CPAC). So that’s really nice. But as I said earlier, everybody has always been approachable, and, I don’t know, it sounds a bit banal to say, pleasant and personable, but they have been – but maybe approachable is a more – I never – I would never hesitate to feel like I – I would never like I couldn’t go up to somebody, and ask them a question, or talk to them about something. So my experience with the researchers has been wonderful.
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- Learning From Others – LindaLinda thinks about the experience of having cancer in a different way than she did before
- Challenging Experiences – LindaLinda felt left out of a conversation with researchers during a large national meeting
- Supports needed – LindaProjects move forward more constructively, according to Linda, when patients receive coaching to help them understand their role and expectations.
- Diversity – LindaEngaging with a broad range of people as partners, advises Linda, should be the goal
- Balancing time and commitments – LindaLinda was frustrated when her engagement obligations interfered with work deadlines
- Valuing contributions – LindaEven though Linda doesn’t expect compensation, she feels patients should be compensated in longer-term projects
- Relationship building – LindaWhere Linda had pleasant interactions with researchers, this led to positive partnership experiences
- Motivations – LindaFor personal and practical reasons, Linda has decided that she may not continue as a patient partner